Saturday, September 19, 2009

Lily's Big Day

The Bug is bound and determined to do everything she can to beat Charlie home. Around 9 a.m., Lily is off the nasal cannula! And she's taken every feeding for the last two days with her bottle! Both are huge steps!

Her breathing has been strong for a while but the nurses and doctors kept wanting to wait to remove the cannulas until her feedings were more under control. Well, since her feedings seem to be better than ever, the time for the cannuals seems to have passed. We were with her until after 9 p.m. and she seemed to be tiring a little after her latest feeding and had a few minor, self-correcting episodes. There's obviously no guarantee that she'll be able to sustain the room air breathing through the night, but hopefully she'll be able to make it. If she can, she'll be able to move into a small crib and leave her isolette behind, just like Charlie.

Nothing all too interested happened with Charlie today. He's still struggling with his reflux after meals. Again the nurses have assured us that it's all normal but it is somewhat disheartened that it doesn't seem any better yet. There are numerous possibilities for what can happen. He could get better on his own within a few days. He could need to have his feedings modified and slowed down. He could ultimately need to go on some kind of medication to help control it. There's no telling right now what will happen, but obviously we're hoping he'll be able to resolve it soon.


Charlie was wide awake and looking cute, even though he was having some major reflux issues this evening.


Charlie seemed fascinated by his mommy's face tonight. He just wanted to keep staring at her and watch her face. I've been there, Charlie. I've been there.


Lily has had all the drama she can handle for one day! How could anyone want to cover this face up with tubes??

29 comments:

Katherine said...

It's so wonderful to see photos of both babies w/out tubes! Way to go, kids, keep up the hard work!

Congratulations, mommy and daddy!

Anonymous said...

Congratulations on having two tube free babies!! Could they be any cuter?! (but I'm sure they will be tomorrow!!) I can't wait until you announce that they are coming home... very soon!! They are truly miracles!

Anonymous said...

Look at those beautiful faces... I love the picture of Charlie and Brooke - the way you are both staring with admiration for each other. xoxoxox And the chunk looks like his greatgrandfather...
Lily you are absolutely gorgeous. Say bye bye to the tubes angels...
Keep it up...

All My Love, Auntie :) xoxoxo

Christina H said...

What beautiful, beautiful pictures!

Lori said...

The are looking totally adorable!

Reflux is SO common in preemies. I had 36 weekers and all 3 of mine had it. Coming home on reflux medicine may actually be a good thing. It will make Charlie more comfortable and better able to eat.

Anonymous said...

What adorable pictures. They are looking great Brooke. Way to go Charlie and Lily!!!!!
Yalitza

Cathy said...

They're both getting so big! They're so adorable as usual!

Jamers said...

So, so great to see two tube-free babies! I'm glad they're progressing so nicely and are closer and closer to going home. I'm so happy for your family. :)

Lauren said...

Oh, lordy. Pics are amazing! I want to sneak into the NICU and do some serious snuggling. Don't worry - I won't. ;)

Anonymous said...

I beg to differ - Charlie looks just like Brooke!!!

Colleen said...

I keep saying this but I LOVE seeing the pictures of Charlie and Lily without their tubes...hopefully your NICU journey is almost over and you can get those babies home!

Jennifer said...

They are so beautiful!!

Melissa said...

They are looking wonderful! Congrats on all the progress. It's amazing how they grow and change. Charlie's reflux problem is so typical in preemies. Hopefully they will find a way to help him soon!

- Melissa (meldoo2002/multiplemamas)

Stephanie said...

Wow way to go babies!!! They are so cute- I love that first picture of Lily!

Rebecca, from CT said...

Lily Bug looks so cute without the cannula on her face!! Here's hoping for continued progress so both babies can come home!!!

Gary said...

They look adorable . . . and big. That's some serious chub going on there.

Anonymous said...

Lily looks like a different baby without the tubes! Gorgeous!

Melissa said...

They are both so beautiful and doing amazingly well! I can't wait to read the post in the next few weeks about both babies being able to come home!

KEEPER OF THE CHEERIOS said...

Hi there! Just wanted to say that your babies are beautiful! My Lilly had reflux pretty bad too. Her first 2 weeks in the NICU she was fine, then it just appeared. It took them a good 2 weeks to diagnose it, then a week to get it under control. She came home on an apnea monitor (just as a precaution) and 2 meds, zantac and reglan. We took her to the Apnea clinic once a month for 3 months. The very first visit they had us thickening her feedings, up to 2 tbsp per oz, but i stuck with 1 tbsp per oz..and i swear she was fixed instantly. Nothing the hospital suggested or tried helped, not even the meds. It was thickening the food. She stopped projectile vomiting and having episodes at all. She was off the monitor and meds by 3 months. Good luck with your little guy. I know it's so hard to see them in pain! Take care!

Kat said...

Lily has the sweetest little face!!!! And Charlie is so handsome!

Reflux is totally normal, full term babies deal with this everyday there are plenty of good medications to control it. My son dealt with the first few months and a modification in diet while Breast Feeding and a switch to a gentle formula after that along with medication controlled it quite nicely.

He's fine now!

Tamara said...

They are both so beautiful! Congrats on being so close to your homecoming. I agree with the previous posters that along with the reflux meds. and being with Mommy and Daddy Charlie will be great soon.

Congrats again!

Mom2Be said...

I'm glad they're doing so well! They're getting so big now that you can really see more how they resemble you guys. Digestion (as I'm sure you know by now) is one of the last things to develop in babies so it's normal that Charlie is having issues. I'm guessing you've tried formula made for sensitive tummies? I hope they continue to improve and that they can come home soon! : )

sue said...

What great pictures! So happy everyone is doing so well.

Jenn said...

I just love seeing their beautiful faces. It makes me so happy for them and for you.

Anonymous said...

It's so nice to see their faces with no tubes. They are absolutely beautiful. I love their expressions!! I'm so glad they are doing well & will be home very soon!!!

Michele from FTHS said...

Am so very, very happy for all of you. It brings tears to my eyes. Way to go, Little D's!!!!

Anonymous said...

Hi Brooke and Joe.

I am your "Aussie" reader, with the little girl called Annaleigh. I started reading your blog after your babies were born, mainly because of our similarities on opposite sides of the world. You see, apart from my Annaleigh, I also have two other girls. I don't have a Lily, but I have a Billie, and I don't have a Charlie, but I have a Zarlee! I also have a "Roy" cat.

Anyway, was just wondering, since your beautiful babies are doing so wonderfully, could we please also have an update on Roy? I would love to know if he realises what he is in for, when his new brother and sister come home in the next few weeks!

Thank you,
Your Australian reader.

JoLynn said...

We had reflux issues with Adam as well. We ended up thickening his feedings with a little rice while he was still in the NICU and that is what got him past it to come home. Our doctor did not want him on zantac with being preemie because she felt it could make him more susceptible to sickness with a lower preemie immune system as it is. So we tried the easier route first and let Adam tell us if he needed something else. It was a little frustrating taking him home with reflux because he had to lay so still after a feeding. The doctor explained that during the time his stomach muscles developed it would get worse because they were contracting. But time passed and he outgrew it.

I think it is fabulous how awesome both kids are doing but Charlie especially. They typically say that a white male is the "laziest" baby - slowest to learn to eat, etc. But Charlie has been a champ. Our Adam was in the hospital an extra 17 days because he couldn't get his feedings down as well as Charlie is. We ended up taking shifts at the hospital to be there for every feeding so he could have the consistency.

I will begin praying that you can take both babies home together. It is heartaching getting discharged with one and leaving the other behind.

Gretchen said...

The babies are looking so wonderful and alert!!! Lily is so gorgeous, especially without the tubes covering some of her face!
GO BABIES!!! Keep up the awesome work, Brooke and Joe you guys must really be amazing parents!!! Not to dismiss that Annaleigh is watching over them and helping them along! I can't wait to see their homecoming pictures!!!
Our prayers and love are with your family.