Today was a big day for Lily Bug – she moved from the intensive care nursery to the special care nursery! This is a baby’s a last stop before leaving the NICU so we are so excited to see her there and we are so proud of her. She’s been on room air consistently now for almost 24 hours, so that is a big step too. We think Lily has gotten tired of hearing about Charlie’s progress and is ready to give him a run for his money.
As for Charlie, this evening he is getting his PCG test. For this test, Charlie spends 12 hours on a super-sensitive monitor that records all his desats and bradies. This test is most often given to determine whether or not a baby needs to go home on a monitor. Charlie and Lily are both getting monitors automatically, since Charlie is on caffeine and both had very low birth weights. So in this case the PCG test is being used to show the doctors just exactly when Charlie has episodes and hopefully figure out pattern to his behaviors. It won’t necessarily help anything, but it’s good to know. We got quite a kick out of the monitor though, as the set up required Charlie to wear a probe and tape on his face making him look like Hannibal Lecter. He enjoyed his evening bottle with fava beans and a nice chianti.
Both babies had their hearing tests today and passed just fine. Another check mark on their “To Do” list for making it home.
Today was also a big day for Charlie’s isolation roommate Ethan. After almost 5 months in the NICU, Ethan went home tonight! Born at just 23 weeks, Ethan is a true miracle who beat all the odds and is now a beautiful, healthy boy. Over the past several weeks we have grown close to Ethan’s parents, and it was hard to say good-bye to them tonight. But it was so wonderful to see them preparing Ethan for his trip home – I can only imagine how wonderful they must feel. So, good luck Ethan! You are an inspiration and we will never, ever forget you!
It's only milk in his bottle, despite what Hannibal Charlie may prefer.
Yup. She's a daddy's girl!
The Bug has the sweetest, most precious face when she's sleeping.