So it seems that Charlie was jealous of his sisters. Sometime late this afternoon, Charlie decided that he was done with the respirator and he pulled his tubes out. Oh, Charlie. He started a course of steroids on Tuesday that was supposed to strengthen his lungs and his throat to get him ready to come off the respirator, but he was supposed to be on those steroids for as much as two full weeks before making the change. I guess he couldn't wait.
It remains to be seen as to whether he can handle BiPAP for any extended period of time. He had a lot of episodes when it first happened but has calmed a bit since. They'll continue giving him the steroids to help his lungs in the meantime.
The girls are both doing okay, though both were having issues this evening, Annaleigh especially. She didn't seem too comfortable and had more episodes than normal, but her numbers all looked good and she's been digesting her 4 ml of breast milk. Lily seems to be breathing and eating okay but she's lost a good bit of weight in the last 24 hours (from 960 grams yesterday to 931 grams today). There's a lot of different reasons a baby would lose that amount of weight so we're trying not to get too bothered by it. Hopefully it was just an anomaly and she'll add some more bulk tomorrow.
The highlight of the day came early. During our morning visit, Brooke got to hold Lily and I got to hold Annaleigh-- at the same time! Since their isolettes are next to each other, we got to put two rocking chairs between their beds so the chairs were next to each other. It was the closest the girls have gotten to each other since birth, and it's as close as we will get to all being together while they're in the NICU, since Charlie will be in isolation for the duration and he won't be allowed out to visit his sisters at all.
It was a good day but a little unnerving with Charlie's drama and Annaleigh's dsats. Both could (and hopefully will) turn out to be nothing major. Only tomorrow will tell!
Lily wanted to check out her mommy. Look at those eyes!!!
Lily is just so beautiful. Honestly, I could look at her eyes all day.
Annaleigh decided that today was a good day to start foaming at the mouth, which led to numerous "don't let her bite you!" jokes all day. Apparently it's funny to make jokes about your child having rabies. Who knew?
6 comments:
Hi Everyone!
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You can help us raise some money for the babies! Thanks everyone!
Thats little boys for you.....it will only get more and more interesting as he gets bigger!
Ok - guys - just a little drama is allowed. That's it. Nothing major. It is now time to behave...
We need to be on a smooth ride from now on - got it...
OMG - I agree with you - Lily's eyes are gorgeous.
Hang in there guys...
All My Love, Auntie :) xoxoxoxo
Hang in there, D's. You are all in my thoughts and prayers.
A little humor is always needed. Here's hoping all the best for this weekend.
Last week I came onto your blog because a user on the bump mentioned it in a post. You two are very strong and inspirational. Your 3 babies are absolutely adorable and are in my thoughts and prayers. They are truly miracle babies.
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